May 16, 2013

The Council recommends that the Secretary consider appropriate mechanisms to assure that the revised National Heart, Lung, and Blood Institute publication "Management and Therapy of Sickle Cell Disease" includes expert opinion about the curative option of hematopoietic cell transpolantation for this disorder.

The Council recommends that HRSA undertake educational/outreach efforts to the sickle cell disease (SCD) patient and provider community to educate them about the progressive nature of SCD, increasing morbidity and mortality in early adulthood (ages 16-35 years), and the role of HSCT and its complications.