September 15, 2014 | Blood Stem Cell

Agenda

Agenda (PDF - 11 KB)

Presentations

Update on Access to Transplantation Workgroup Charge/Accomplishments/Next Steps (PDF - 1 MB)

Quality of Care Manuscript (PDF - 559 KB)

Likelihood of Getting a Match – Article (PDF - 885 KB)

Haploidentical Transplantation (PDF - 2 MB)

Program Report (PDF - 477 KB)

Office of Human Research Protections – Overview (PDF - 201 KB)

Advancing Hematopoietic Stem Cell Transplantation for Hemoglobinopathies – Update (PDF - 337 KB)

Licensure Challenges Banks that are not licensed – Cleveland Community Cord Blood Center (PDF - 2 MB)

Licensure Challenges Banks that are not licensed – Bergen Community Regional Blood Center (PDF - 75 KB)

Meeting Summary

Meeting Summary Notes (PDF - 128 KB)

Recommendations

Recommendation 25

ACBSCT recommends that the Secretary recognize hematopoietic transplantation for sickle cell disease as a covered benefit for all Federal programs for which the Secretary has appropriate responsibility and oversight.

Recommendation 26

ACBSCT recommends that the Secretary direct HRSA and other HHS agencies to collaborate with the CIBMTR to review research level data collection on allotransplants performed for sickle cell disease (SCD) and consider appropriate reimbursement to optimize research data collection. This review should include SCD-specific data elements collected, the completeness of data collection and mechanisms for reimbursement.

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